Development of Canadian Recommendations for the Management of ANCA-Associated Vasculitides: Results of the National Needs Assessment Questionnaire
Leilani Famorca 1, Marinka Twilt 2, Lillian Barra 3, Volodko Bakowsky 4, Susanne Benseler 5, David Cabral 6, Simon Carette 7, Navjot Dhindsa 8, Aurore Fifi-Mah 9, Michelle Goulet 10, Nader Khalidi 11, Majed Khraishi 12, Lucy McGeoch 7, Nataliya Milman 13, Christian Pineau 14, Kam Shojania 15, Regina Taylor-Gjevre 16, Tanveer Towheed 17, Judith Trudeau 18, Elaine Yacyshyn 19, Patrick Liang 20, Christian Pagnoux*, 7, for the Canadian Vasculitis network (CanVasc)
Identifiers and Pagination:Year: 2015
First Page: 16
Last Page: 20
Publisher ID: TORJ-9-16
Article History:Received Date: 10/11/2014
Revision Received Date: 9/3/2015
Acceptance Date: 13/3/2015
Electronic publication date: 14 /4/2015
Collection year: 2015
open-access license: This is an open access article licensed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/3.0/) which permits unrestricted, non-commercial use, distribution and reproduction in any medium, provided the work is properly cited.
To study variations in Canadian clinical practice patterns for the management of ANCA-associated vasculitis (AAV) and identify points to consider for the development of national recommendations.
Material and Methodology :
A 30-item needs assessment questionnaire was sent to all members of the Canadian Vasculitis network (CanVasc), Canadian Rheumatology Association (CRA), Canadian Thoracic Society (CTS) and Canadian Society of Nephrology (CSN). Respondent characteristics, practice patterns, concerns and expectations were analyzed.
Among 132 physicians who followed at least 1 vasculitis patient and responded to the survey, 39% stated that they felt confident in their management of AAV. Several variations in practice were observed regarding diagnostic procedure, induction and maintenance treatments and use of biologics; some were due to logistic constraints (difficulties in access to some specific tests, drugs or care; lack of health care coverage for the costs). The top 5 topics for which recommendations are expected involve treatment for remission induction, maintenance, refractory disease, and relapse as well as biologics.
Practice variations identified in this needs assessment survey will serve to formulate key questions for the development of CanVasc recommendations.